Mandate

The St. Paul’s Hospital Adult Cystic Fibrosis Program is committed to improving the quality of life and health outcomes of individuals living with CF.

In order to achieve this goal, we have a research mandate to be involved in clinical studies that:

1) improve our understanding of CF lung disease and other CF-related complications;
2) evaluate new investigational CF drugs;
3) improve the quality of CF care delivery.

By participating in research studies offered through our clinic, you are making a valuable contribution to advancing the care of CF patients locally and around the world. Participation in research is completely voluntary and the clinical care you receive will never be affected by your decision to participate or not.

Our CF clinical research coordinators can provide you with information on all of our active research studies when you visit the clinic. If you would like more information on these studies please contact one of our CF research coordinators:

Leeanne Parris: 604-806-8931 and lparris@providencehealth.bc.ca

Ene Agada : 604-682-2344 ext 63721 and eagada@providencehealth.bc.ca 

Ashley Kang: 604-682-2344 ext 68812 and akang1@providencehealth.bc.ca

Cystic Fibrosis related Diabetes (CFRD):

As people are living longer with CF, some other conditions like impaired glucose tolerance and diabetes are becoming more common. 

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Bone Health

Osteopenia and osteoporosis is a condition in which the bones become more porous.

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Parenthood

Many of our patients are living full lives including having families.

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Transplant

Transplant is a treatment option some of our patients may wish to explore.

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