Consistent inpatient and outpatient care by a specialized CF team, as well as good self-care, have been important in improving the length and quality of life for people living with CF.
The sections below provide information on patient services offered by the Adult Cystic Fibrosis Clinic in Vancouver, as well as other supportive, patient related services.
When patients are sick they are encouraged to phone the clinic (604-806-8522) to speak to a nurse for an assessment, to seek medical advice or to request admission into hospital.
The Clinic Coordinator responds to phone calls from patients who are ill, require hospitalization, or home IV antibiotics
Maintaining a healthy weight and optimizing your nutrition has been shown to be closely related to the best outcomes in Cystic Fibrosis (CF).
- Vitamins and Minerals in Cystic Fibrosis
- Pancreatic Insufficiency
- Distal Intestinal Obstruction Syndrome (DIOS)
- Nutritional Products Covered by Pharmacare
- Bone Health
The CF physiotherapist provides consultation and support to patients regarding airway clearance techniques and equipment, exercise and CF-related musculoskeletal issues.
Pharmacists at St. Paul's are responsible for the safe and appropriate use of medications to achieve optimal outcomes that improve CF patients’ quality of life.
CF is a multi-system condition which can impact significantly both physically and psychologically on people living with CF, as well as their families.
- Drug and Medical Coverage
- Cystic Fibrosis Grant
- Disability and Employment Insurance Sickness Benefits
- Vocational and Educational Resources
- Travelling with CF
- Supportive Resources
Changes Through Life
As people with CF are living longer, new challenges are emerging such as diabetes, osteoporosis, and family planning.
- Cystic Fibrosis related Diabetes (CFRD):
- Bone Health
- Transition from Children’s to Adult Clinic
The CF Clinic also offers additional consulting services to assist patients living with cystic fibrosis.